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	<title>Comments on: Is autism really a &#8220;problem?&#8221;</title>
	<atom:link href="http://www.esteeklar.com/2010/02/20/is-autism-really-a-problem/feed/" rel="self" type="application/rss+xml" />
	<link>http://www.esteeklar.com/2010/02/20/is-autism-really-a-problem/</link>
	<description>The Joy of Autism is about our journey with autism and our opinions about how society views it.</description>
	<lastBuildDate>Tue, 07 Sep 2010 13:14:01 +0000</lastBuildDate>
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		<title>By: Estée Klar &#187; Blog Archive &#187; A Letter from Lewis Carroll</title>
		<link>http://www.esteeklar.com/2010/02/20/is-autism-really-a-problem/comment-page-1/#comment-9178</link>
		<dc:creator>Estée Klar &#187; Blog Archive &#187; A Letter from Lewis Carroll</dc:creator>
		<pubDate>Mon, 22 Mar 2010 21:19:45 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=3051#comment-9178</guid>
		<description>[...] Alice in Wonderland in an attempt to catch up on all of those wonderful movies out there. I wrote about Carroll and his autism here.  I have come home to receive a &#8220;love letter&#8221; from my son and then to coincidentally read [...]</description>
		<content:encoded><![CDATA[<p>[...] Alice in Wonderland in an attempt to catch up on all of those wonderful movies out there. I wrote about Carroll and his autism here.  I have come home to receive a &#8220;love letter&#8221; from my son and then to coincidentally read [...]</p>
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		<title>By: Estee</title>
		<link>http://www.esteeklar.com/2010/02/20/is-autism-really-a-problem/comment-page-1/#comment-8346</link>
		<dc:creator>Estee</dc:creator>
		<pubDate>Tue, 23 Feb 2010 19:03:22 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=3051#comment-8346</guid>
		<description>Sam, your blog looks very interesting too!</description>
		<content:encoded><![CDATA[<p>Sam, your blog looks very interesting too!</p>
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		<title>By: Sam Bennetts</title>
		<link>http://www.esteeklar.com/2010/02/20/is-autism-really-a-problem/comment-page-1/#comment-8344</link>
		<dc:creator>Sam Bennetts</dc:creator>
		<pubDate>Tue, 23 Feb 2010 18:50:23 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=3051#comment-8344</guid>
		<description>I find this fascinating as I have just stumbled across this blog, but only earlier I was discussing whether my complete lack of ability to judge distance, time or size with friends was a by product of my autism. I think some further reading might be in order for me!

- sambennetts.com</description>
		<content:encoded><![CDATA[<p>I find this fascinating as I have just stumbled across this blog, but only earlier I was discussing whether my complete lack of ability to judge distance, time or size with friends was a by product of my autism. I think some further reading might be in order for me!</p>
<p>- sambennetts.com</p>
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		<title>By: Alyson Bradley AsPlanet</title>
		<link>http://www.esteeklar.com/2010/02/20/is-autism-really-a-problem/comment-page-1/#comment-8339</link>
		<dc:creator>Alyson Bradley AsPlanet</dc:creator>
		<pubDate>Tue, 23 Feb 2010 11:10:48 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=3051#comment-8339</guid>
		<description>I so feel its about understanding our different strengths and weaknesses, we often can do complex things like the Rubik cube, but easy tasks can frustrate us often becoming an irrelevance.... we have our own way of doing things, interrupting the world, a different sort of intelligence in a way different but the same, let me explain for non spectrum minds from north to south, spectrum minds often from North/east to south west.!</description>
		<content:encoded><![CDATA[<p>I so feel its about understanding our different strengths and weaknesses, we often can do complex things like the Rubik cube, but easy tasks can frustrate us often becoming an irrelevance&#8230;. we have our own way of doing things, interrupting the world, a different sort of intelligence in a way different but the same, let me explain for non spectrum minds from north to south, spectrum minds often from North/east to south west.!</p>
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		<title>By: Estee</title>
		<link>http://www.esteeklar.com/2010/02/20/is-autism-really-a-problem/comment-page-1/#comment-8327</link>
		<dc:creator>Estee</dc:creator>
		<pubDate>Mon, 22 Feb 2010 15:43:35 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=3051#comment-8327</guid>
		<description>It could also be a trigger. But he makes noises that sound like choking now and this is new. I will not rest until I at least have his tests done.</description>
		<content:encoded><![CDATA[<p>It could also be a trigger. But he makes noises that sound like choking now and this is new. I will not rest until I at least have his tests done.</p>
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		<title>By: Sue</title>
		<link>http://www.esteeklar.com/2010/02/20/is-autism-really-a-problem/comment-page-1/#comment-8321</link>
		<dc:creator>Sue</dc:creator>
		<pubDate>Mon, 22 Feb 2010 10:59:44 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=3051#comment-8321</guid>
		<description>My son is also 8, almost 9, and he has been &quot;off&quot; for the past couple of months, and over the years, I have noticed that this time of year is ALWAYS a difficult one for him.....I wonder if Adam is responding to the weather in any way?  I myself struggle with the &quot;winter blues&quot; and I often wonder if that is why my son always seems to have his worst behaviours January to March.....I have absolutely no scientific evidence to back me up.....but I can say that anectdotally when ever my son has his worst episodes of behaviour you can bet that a full moon is right aroudn the corner, so I wonder if the seasons also have an effect....sounds crazy, but it makes me go &quot;hmmmmmmm&quot;</description>
		<content:encoded><![CDATA[<p>My son is also 8, almost 9, and he has been &#8220;off&#8221; for the past couple of months, and over the years, I have noticed that this time of year is ALWAYS a difficult one for him&#8230;..I wonder if Adam is responding to the weather in any way?  I myself struggle with the &#8220;winter blues&#8221; and I often wonder if that is why my son always seems to have his worst behaviours January to March&#8230;..I have absolutely no scientific evidence to back me up&#8230;..but I can say that anectdotally when ever my son has his worst episodes of behaviour you can bet that a full moon is right aroudn the corner, so I wonder if the seasons also have an effect&#8230;.sounds crazy, but it makes me go &#8220;hmmmmmmm&#8221;</p>
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		<title>By: Estee</title>
		<link>http://www.esteeklar.com/2010/02/20/is-autism-really-a-problem/comment-page-1/#comment-8318</link>
		<dc:creator>Estee</dc:creator>
		<pubDate>Mon, 22 Feb 2010 05:05:30 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=3051#comment-8318</guid>
		<description>My father relayed to me a story tonight of when he had moved several times as a child, he would keep exploring. He would sleep as a child for only 4 hours a night. It used to drive his mother nuts (in addition to finding every nook and cranny of the house and going into it). This is just like Adam. Also, looking for tight dark spaces, deep pressure, climbing into drawers and under beds seems to me that Adam is speaking volumes -- he is asking for security. I have to admit this weekend surprised me after he was so happy mid-last week. It was the most difficult weekend yet in terms of spasming. I have to be prudent to get tests done so I can rest my mind that this is not organic. If it is, then I will at least know what to do.

I tend to believe this is transitional stress and it amazes me how adults forget how difficult this is for little children -- including me, I think. Then I remember how hard the year has been for me and want to smack my head -- what am I thinking?!  Of course this is dawning on Adam now in a HUGE way.

It seems that he loves his new home. But also he is dealing with change. Excitement and distress are happening at the same time here.

Thanks for your comment, Kristina. It&#039;s hard to wait for the answers.</description>
		<content:encoded><![CDATA[<p>My father relayed to me a story tonight of when he had moved several times as a child, he would keep exploring. He would sleep as a child for only 4 hours a night. It used to drive his mother nuts (in addition to finding every nook and cranny of the house and going into it). This is just like Adam. Also, looking for tight dark spaces, deep pressure, climbing into drawers and under beds seems to me that Adam is speaking volumes &#8212; he is asking for security. I have to admit this weekend surprised me after he was so happy mid-last week. It was the most difficult weekend yet in terms of spasming. I have to be prudent to get tests done so I can rest my mind that this is not organic. If it is, then I will at least know what to do.</p>
<p>I tend to believe this is transitional stress and it amazes me how adults forget how difficult this is for little children &#8212; including me, I think. Then I remember how hard the year has been for me and want to smack my head &#8212; what am I thinking?!  Of course this is dawning on Adam now in a HUGE way.</p>
<p>It seems that he loves his new home. But also he is dealing with change. Excitement and distress are happening at the same time here.</p>
<p>Thanks for your comment, Kristina. It&#8217;s hard to wait for the answers.</p>
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		<title>By: kristina</title>
		<link>http://www.esteeklar.com/2010/02/20/is-autism-really-a-problem/comment-page-1/#comment-8315</link>
		<dc:creator>kristina</dc:creator>
		<pubDate>Mon, 22 Feb 2010 01:35:45 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=3051#comment-8315</guid>
		<description>I have also wondered about the effects of Melatonin---Charlie actually fell asleep without it tonight.  He does this about once every one or two weeks and I like knowing sometimes he just does not need it.

Regarding Adam being confused with so many moves and transitions and the back and forth between houses (and his old house too)---having resettled in our old house fairly recently, I would say that Charlie was initially fine with this, and then had a long transition period. Adam&#039;s had so much to deal with---it often takes Charlie weeks, months, to adjust to things. He is, like Adam, very sensitive to everything around him and often, when there aren&#039;t the words yet, the communication comes through the body (in Charlie&#039;s case).

Thank you for the Alice in Wonderland analogy. I think it is one to keep pondering.</description>
		<content:encoded><![CDATA[<p>I have also wondered about the effects of Melatonin&#8212;Charlie actually fell asleep without it tonight.  He does this about once every one or two weeks and I like knowing sometimes he just does not need it.</p>
<p>Regarding Adam being confused with so many moves and transitions and the back and forth between houses (and his old house too)&#8212;having resettled in our old house fairly recently, I would say that Charlie was initially fine with this, and then had a long transition period. Adam&#8217;s had so much to deal with&#8212;it often takes Charlie weeks, months, to adjust to things. He is, like Adam, very sensitive to everything around him and often, when there aren&#8217;t the words yet, the communication comes through the body (in Charlie&#8217;s case).</p>
<p>Thank you for the Alice in Wonderland analogy. I think it is one to keep pondering.</p>
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		<title>By: Estee</title>
		<link>http://www.esteeklar.com/2010/02/20/is-autism-really-a-problem/comment-page-1/#comment-8305</link>
		<dc:creator>Estee</dc:creator>
		<pubDate>Sun, 21 Feb 2010 14:43:10 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=3051#comment-8305</guid>
		<description>I know some has been written on Melatonin. It just so happens Adam had his worst spasming day yesterday. I&#039;m not sure if he&#039;s deficient in Calcium or Magnesium or of course I&#039;m concerned it&#039;s a side effect of Melantonin. 

It has been Adam&#039;s first week in his new house (not even a full week). Yesterday was also his first weekend. Adam doesn&#039;t tantrum. He hasn&#039;t cried all that much. I&#039;m also wondering if this is an effect of transition.

Last night he spent the night with this dad who has moved back into our old house and Adam was awake all night. You see? Maybe Adam is completely confused right now.

But the spasms are frightening because he can&#039;t even hold a cup of juice without spilling it. 

I love my little Autie. I love everything he is. This stuff just started last December and it has been on and off. I don&#039;t see autism as the problem -- it&#039;s this stuff that&#039;s particularly difficult. And how much of this is because of all the changes in his life? Or are they new organic issues?</description>
		<content:encoded><![CDATA[<p>I know some has been written on Melatonin. It just so happens Adam had his worst spasming day yesterday. I&#8217;m not sure if he&#8217;s deficient in Calcium or Magnesium or of course I&#8217;m concerned it&#8217;s a side effect of Melantonin. </p>
<p>It has been Adam&#8217;s first week in his new house (not even a full week). Yesterday was also his first weekend. Adam doesn&#8217;t tantrum. He hasn&#8217;t cried all that much. I&#8217;m also wondering if this is an effect of transition.</p>
<p>Last night he spent the night with this dad who has moved back into our old house and Adam was awake all night. You see? Maybe Adam is completely confused right now.</p>
<p>But the spasms are frightening because he can&#8217;t even hold a cup of juice without spilling it. </p>
<p>I love my little Autie. I love everything he is. This stuff just started last December and it has been on and off. I don&#8217;t see autism as the problem &#8212; it&#8217;s this stuff that&#8217;s particularly difficult. And how much of this is because of all the changes in his life? Or are they new organic issues?</p>
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		<title>By: Phil Schwarz</title>
		<link>http://www.esteeklar.com/2010/02/20/is-autism-really-a-problem/comment-page-1/#comment-8300</link>
		<dc:creator>Phil Schwarz</dc:creator>
		<pubDate>Sun, 21 Feb 2010 07:11:28 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=3051#comment-8300</guid>
		<description>My favorite version of &quot;Jabberwocky&quot; is the translation into Yiddish by Raphael Finkel: http://www.cs.uky.edu/~raphael/yiddish/jabber.html

&quot;Calloo! Callay! O frabjous day!&#039; becomes (in transliteration) &quot;Calloo!  Callois!  A yom-tov grois!&quot;

Delicious culture-meld :-).</description>
		<content:encoded><![CDATA[<p>My favorite version of &#8220;Jabberwocky&#8221; is the translation into Yiddish by Raphael Finkel: <a href="http://www.cs.uky.edu/~raphael/yiddish/jabber.html" rel="nofollow">http://www.cs.uky.edu/~raphael/yiddish/jabber.html</a></p>
<p>&#8220;Calloo! Callay! O frabjous day!&#8217; becomes (in transliteration) &#8220;Calloo!  Callois!  A yom-tov grois!&#8221;</p>
<p>Delicious culture-meld :-).</p>
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		<title>By: Clay</title>
		<link>http://www.esteeklar.com/2010/02/20/is-autism-really-a-problem/comment-page-1/#comment-8293</link>
		<dc:creator>Clay</dc:creator>
		<pubDate>Sun, 21 Feb 2010 00:18:13 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=3051#comment-8293</guid>
		<description>I see no objection to melatonin to aid sleep. I take it whenever I think I&#039;m going to need to get to sleep soon, as when I have an early appointment in the morning. I have Amitriptyline  and Lorazepam, but I prefer the melatonin, as it doesn&#039;t leave me feeling drugged in the morning. I don&#039;t know of any bad  side effects.</description>
		<content:encoded><![CDATA[<p>I see no objection to melatonin to aid sleep. I take it whenever I think I&#8217;m going to need to get to sleep soon, as when I have an early appointment in the morning. I have Amitriptyline  and Lorazepam, but I prefer the melatonin, as it doesn&#8217;t leave me feeling drugged in the morning. I don&#8217;t know of any bad  side effects.</p>
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		<title>By: Estee</title>
		<link>http://www.esteeklar.com/2010/02/20/is-autism-really-a-problem/comment-page-1/#comment-8290</link>
		<dc:creator>Estee</dc:creator>
		<pubDate>Sat, 20 Feb 2010 20:47:08 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=3051#comment-8290</guid>
		<description>Good point, L.R.  I say this on a particularly bad body spasming day for Adam. I want to find out what THAT is.</description>
		<content:encoded><![CDATA[<p>Good point, L.R.  I say this on a particularly bad body spasming day for Adam. I want to find out what THAT is.</p>
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		<title>By: Laurentius Rex</title>
		<link>http://www.esteeklar.com/2010/02/20/is-autism-really-a-problem/comment-page-1/#comment-8288</link>
		<dc:creator>Laurentius Rex</dc:creator>
		<pubDate>Sat, 20 Feb 2010 20:34:21 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=3051#comment-8288</guid>
		<description>Ludovicus Carolus was if nothing else an interesting mathematician and philosopher. 

I have cited the annotated Jabberwocky in the context of linguistic conundrications as he is one of the more inventive users of English.

I don&#039;t suppose you have ever heard of hemisomatagnosia, but it is a condition where the perception is that one side of you is bigger than the other, something which appears to be part of my migraine aura phenomenon.

You don&#039;t necessarily have to be autistic to have a non standard neurology, mine is maybe twice or three times exceptional, I would still be different even if I weren&#039;t autistic, and in some way the later discovery of migraine aura as an explanation for so many perceptual phenomena was a much greater and more significant revalation than autism if you can believe that</description>
		<content:encoded><![CDATA[<p>Ludovicus Carolus was if nothing else an interesting mathematician and philosopher. </p>
<p>I have cited the annotated Jabberwocky in the context of linguistic conundrications as he is one of the more inventive users of English.</p>
<p>I don&#8217;t suppose you have ever heard of hemisomatagnosia, but it is a condition where the perception is that one side of you is bigger than the other, something which appears to be part of my migraine aura phenomenon.</p>
<p>You don&#8217;t necessarily have to be autistic to have a non standard neurology, mine is maybe twice or three times exceptional, I would still be different even if I weren&#8217;t autistic, and in some way the later discovery of migraine aura as an explanation for so many perceptual phenomena was a much greater and more significant revalation than autism if you can believe that</p>
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		<title>By: Stephanie</title>
		<link>http://www.esteeklar.com/2010/02/20/is-autism-really-a-problem/comment-page-1/#comment-8287</link>
		<dc:creator>Stephanie</dc:creator>
		<pubDate>Sat, 20 Feb 2010 20:30:32 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=3051#comment-8287</guid>
		<description>That seems to be the big question:  How are our biases shaping how we perceive our children&#039;s experiences?

It seems many scientists aren&#039;t prepared to question their own biases, and that&#039;s rather frustrating for those of us who need the answers science can provide.  It&#039;s always good to see researchers who are ready and willing to question the assumptions of the status quo.  We need more of that before we&#039;re going to answers we can use.</description>
		<content:encoded><![CDATA[<p>That seems to be the big question:  How are our biases shaping how we perceive our children&#8217;s experiences?</p>
<p>It seems many scientists aren&#8217;t prepared to question their own biases, and that&#8217;s rather frustrating for those of us who need the answers science can provide.  It&#8217;s always good to see researchers who are ready and willing to question the assumptions of the status quo.  We need more of that before we&#8217;re going to answers we can use.</p>
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