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	<title>Comments on: We&#8217;re in the &#8220;struggle&#8221; part</title>
	<atom:link href="http://www.esteeklar.com/2009/12/13/in-the-struggle-part/feed/" rel="self" type="application/rss+xml" />
	<link>http://www.esteeklar.com/2009/12/13/in-the-struggle-part/</link>
	<description>The Joy of Autism is about our journey with autism and our opinions about how society views it.</description>
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		<title>By: Estee Klar</title>
		<link>http://www.esteeklar.com/2009/12/13/in-the-struggle-part/comment-page-1/#comment-6678</link>
		<dc:creator>Estee Klar</dc:creator>
		<pubDate>Mon, 14 Dec 2009 20:14:39 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=2441#comment-6678</guid>
		<description>We don&#039;t like to either, Kristina. Anyway, our EEG is now scheduled for tomorrow which is somewhat of a temporary relief in that we should know something (or rule this out) in about the next 36 hours.</description>
		<content:encoded><![CDATA[<p>We don&#8217;t like to either, Kristina. Anyway, our EEG is now scheduled for tomorrow which is somewhat of a temporary relief in that we should know something (or rule this out) in about the next 36 hours.</p>
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		<title>By: kristina</title>
		<link>http://www.esteeklar.com/2009/12/13/in-the-struggle-part/comment-page-1/#comment-6671</link>
		<dc:creator>kristina</dc:creator>
		<pubDate>Mon, 14 Dec 2009 01:56:58 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=2441#comment-6671</guid>
		<description>What am ordeal for Adam and you to go through. Hope he is all right and can&#039;t believe that you had to wait so very, very long.

I parcel out the melatonin carefully for Charlie; never want to overdo it. The past few nights he has been falling asleep without it but you can be sure we will take some when we are on an airplane next week.

Thanks for the music, Estée.</description>
		<content:encoded><![CDATA[<p>What am ordeal for Adam and you to go through. Hope he is all right and can&#8217;t believe that you had to wait so very, very long.</p>
<p>I parcel out the melatonin carefully for Charlie; never want to overdo it. The past few nights he has been falling asleep without it but you can be sure we will take some when we are on an airplane next week.</p>
<p>Thanks for the music, Estée.</p>
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		<title>By: guichetta4auttingout</title>
		<link>http://www.esteeklar.com/2009/12/13/in-the-struggle-part/comment-page-1/#comment-6670</link>
		<dc:creator>guichetta4auttingout</dc:creator>
		<pubDate>Mon, 14 Dec 2009 01:53:23 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=2441#comment-6670</guid>
		<description>Wish your family strength &amp; patience.</description>
		<content:encoded><![CDATA[<p>Wish your family strength &amp; patience.</p>
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		<title>By: DJ</title>
		<link>http://www.esteeklar.com/2009/12/13/in-the-struggle-part/comment-page-1/#comment-6668</link>
		<dc:creator>DJ</dc:creator>
		<pubDate>Sun, 13 Dec 2009 21:48:16 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=2441#comment-6668</guid>
		<description>Poor kidlet. :^( What a nightmare that must have been for both of you!

Thank goodness for the melatonin! A friend of mine says it works wonders for her son when he cannot sleep (He&#039;s on the autism spectrum too). I&#039;ve considered getting some for myself and I think I will get some since it seems to work and not do the opposite. I tend to have very odd reactions to medications which is why I avoid psych drugs like the plague. Many others on the autism spectrum have told me that they&#039;ve had some bad reactions to psych meds... sometimes the opposite effect.

My first encounter with a benzo was a disaster. I cannot remember any of it, but I was given the sedative for a test they were doing. I blacked out, punched the doctor and then wouldn&#039;t wake up. They had to give me the antidote or I might not have woken up. When I awoke, however, I felt more relaxed. The doctor at the hospital told me he had suspected I&#039;d have an odd reaction, so he gave me half the dose he would give to a 2 year old. I don&#039;t even want to know what may have happened if he had given me the dose that would have been appropriate for an adult of my weight and mass. 

I wish you and Adam all the best and send you my love. You&#039;re both in my prayers too. :^)</description>
		<content:encoded><![CDATA[<p>Poor kidlet. :^( What a nightmare that must have been for both of you!</p>
<p>Thank goodness for the melatonin! A friend of mine says it works wonders for her son when he cannot sleep (He&#8217;s on the autism spectrum too). I&#8217;ve considered getting some for myself and I think I will get some since it seems to work and not do the opposite. I tend to have very odd reactions to medications which is why I avoid psych drugs like the plague. Many others on the autism spectrum have told me that they&#8217;ve had some bad reactions to psych meds&#8230; sometimes the opposite effect.</p>
<p>My first encounter with a benzo was a disaster. I cannot remember any of it, but I was given the sedative for a test they were doing. I blacked out, punched the doctor and then wouldn&#8217;t wake up. They had to give me the antidote or I might not have woken up. When I awoke, however, I felt more relaxed. The doctor at the hospital told me he had suspected I&#8217;d have an odd reaction, so he gave me half the dose he would give to a 2 year old. I don&#8217;t even want to know what may have happened if he had given me the dose that would have been appropriate for an adult of my weight and mass. </p>
<p>I wish you and Adam all the best and send you my love. You&#8217;re both in my prayers too. :^)</p>
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		<title>By: Madmother</title>
		<link>http://www.esteeklar.com/2009/12/13/in-the-struggle-part/comment-page-1/#comment-6666</link>
		<dc:creator>Madmother</dc:creator>
		<pubDate>Sun, 13 Dec 2009 21:06:56 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=2441#comment-6666</guid>
		<description>It is horrific what we as parents face daily. The bigotry, the ignorance, the incredible assumptions about our children. Good on you for retaining your dignity, I do not think I would have.</description>
		<content:encoded><![CDATA[<p>It is horrific what we as parents face daily. The bigotry, the ignorance, the incredible assumptions about our children. Good on you for retaining your dignity, I do not think I would have.</p>
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		<title>By: Leda</title>
		<link>http://www.esteeklar.com/2009/12/13/in-the-struggle-part/comment-page-1/#comment-6665</link>
		<dc:creator>Leda</dc:creator>
		<pubDate>Sun, 13 Dec 2009 20:26:58 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=2441#comment-6665</guid>
		<description>Great blog, Estee!

What a nightmare in the hospital! As a mother of three asthmatic boys (I was very often in emergency), I know there is a real problem of treating the pain (they are making some progress), fear and stress of children. And fear makes the symptomes worse.. I can only imagine how difficult it was for Adam and you. C&#039;est inadmissible.</description>
		<content:encoded><![CDATA[<p>Great blog, Estee!</p>
<p>What a nightmare in the hospital! As a mother of three asthmatic boys (I was very often in emergency), I know there is a real problem of treating the pain (they are making some progress), fear and stress of children. And fear makes the symptomes worse.. I can only imagine how difficult it was for Adam and you. C&#8217;est inadmissible.</p>
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		<title>By: Estee</title>
		<link>http://www.esteeklar.com/2009/12/13/in-the-struggle-part/comment-page-1/#comment-6664</link>
		<dc:creator>Estee</dc:creator>
		<pubDate>Sun, 13 Dec 2009 20:08:35 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=2441#comment-6664</guid>
		<description>Jill,

Being a lectuerer is tiring. Especially when people think that one is doing it to be right. It&#039;s far from the purose, true?</description>
		<content:encoded><![CDATA[<p>Jill,</p>
<p>Being a lectuerer is tiring. Especially when people think that one is doing it to be right. It&#8217;s far from the purose, true?</p>
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		<title>By: Estee</title>
		<link>http://www.esteeklar.com/2009/12/13/in-the-struggle-part/comment-page-1/#comment-6663</link>
		<dc:creator>Estee</dc:creator>
		<pubDate>Sun, 13 Dec 2009 20:02:23 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=2441#comment-6663</guid>
		<description>Thanks my good friend for the good translation.

Also, &quot;der zweck des lebens ist das lebens selbst&quot; is &quot;the purpose of life is life itself.&quot;</description>
		<content:encoded><![CDATA[<p>Thanks my good friend for the good translation.</p>
<p>Also, &#8220;der zweck des lebens ist das lebens selbst&#8221; is &#8220;the purpose of life is life itself.&#8221;</p>
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		<title>By: Leda</title>
		<link>http://www.esteeklar.com/2009/12/13/in-the-struggle-part/comment-page-1/#comment-6662</link>
		<dc:creator>Leda</dc:creator>
		<pubDate>Sun, 13 Dec 2009 18:50:56 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=2441#comment-6662</guid>
		<description>The text is from Théophile de Viau.  Music by Reynaldo Hahn. The singer is Philippe Jarrousky, very known in France

Translation: (by Charles Johnston)

To Chloris


If it be true, Chloris, that thou lovst me
(And I understand that thou dost love me well),
I do believe that even kings
Could know such happiness as mine.

How unwelcome death would be,
If it came to exchange my fortune
With the joy of heaven!

All that they say of ambrosia
Does not fire my imagination
Like the favour of thine eyes.</description>
		<content:encoded><![CDATA[<p>The text is from Théophile de Viau.  Music by Reynaldo Hahn. The singer is Philippe Jarrousky, very known in France</p>
<p>Translation: (by Charles Johnston)</p>
<p>To Chloris</p>
<p>If it be true, Chloris, that thou lovst me<br />
(And I understand that thou dost love me well),<br />
I do believe that even kings<br />
Could know such happiness as mine.</p>
<p>How unwelcome death would be,<br />
If it came to exchange my fortune<br />
With the joy of heaven!</p>
<p>All that they say of ambrosia<br />
Does not fire my imagination<br />
Like the favour of thine eyes.</p>
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		<title>By: Jill Walton</title>
		<link>http://www.esteeklar.com/2009/12/13/in-the-struggle-part/comment-page-1/#comment-6661</link>
		<dc:creator>Jill Walton</dc:creator>
		<pubDate>Sun, 13 Dec 2009 18:31:23 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=2441#comment-6661</guid>
		<description>We have been through the same every time we experienced the emergency room.  Hang in  is there Estee. You&#039;ll probably end up doing what I do and that is lecture them on Autism. Dev&#039;s face breaks out when he&#039;s stressed now. I&#039;ve been telling doctors for years about this, and sometimes with no results. We have actually had a doctor throw us out of an emergency room because he couldn&#039;t handle Devon, and Devon knew it.
Good luck to both of you.
Jill</description>
		<content:encoded><![CDATA[<p>We have been through the same every time we experienced the emergency room.  Hang in  is there Estee. You&#8217;ll probably end up doing what I do and that is lecture them on Autism. Dev&#8217;s face breaks out when he&#8217;s stressed now. I&#8217;ve been telling doctors for years about this, and sometimes with no results. We have actually had a doctor throw us out of an emergency room because he couldn&#8217;t handle Devon, and Devon knew it.<br />
Good luck to both of you.<br />
Jill</p>
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		<title>By: The Muser</title>
		<link>http://www.esteeklar.com/2009/12/13/in-the-struggle-part/comment-page-1/#comment-6660</link>
		<dc:creator>The Muser</dc:creator>
		<pubDate>Sun, 13 Dec 2009 17:29:51 +0000</pubDate>
		<guid isPermaLink="false">http://www.esteeklar.com/?p=2441#comment-6660</guid>
		<description>Oh, this is so beautiful. I&#039;m so sorry for the ignorance you encountered. And am hoping you find out what&#039;s going on with Adam soon. You write about him with such love and respect that I feel like I know and love him too!</description>
		<content:encoded><![CDATA[<p>Oh, this is so beautiful. I&#8217;m so sorry for the ignorance you encountered. And am hoping you find out what&#8217;s going on with Adam soon. You write about him with such love and respect that I feel like I know and love him too!</p>
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